Wednesday, May 21, 2008

Scared witless

Not really a fibery update this week guys. My baby did something on Friday and then Sunday that really has frightened me beyond words. His lips turned blue in his sleep.

In trying to discover what caused it I've concluded that modern medicine is just barbaric.

My poor little man's been a pin cushion, been jammed in a Plexiglas frame that bolts shut on the sides, while he sits on a saddle to get chest X-rays, had an EKG run, and still has to have an EEG run that they can't get scheduled until mid June at Yale New Haven. I'm exhausted from it all, he's beyond words of done with it all. They don't know yet why he is going cyanotic when he sleeps.

It hasn't been something they've been able to observe... outside of a possible arrhythmia - there's a chance it was a series of small seizures - but they just don't know. It first started happening on Friday - and was noted by my husband at nap time.

Sunday I had 4 incidents of it while we were in the car, and I decided that I'd call my HMO's Nurse line. They suggested getting him into the Children's hospital that night, no later. Home on Sunday night, we went to his pediatrician early monday, and I spent the day in and out of medical facilities, and again the childrens hospital in Hartford.

They sent him home, his little arm covered in paper tape and gauze that he immedietly tried to pull off, that covered the site where they drew multiple HUGE vials of blood from him off, and he spends time rubbing the bruise on his leg from where they jammed him into the X-ray frame so they could get a chest X-ray

His heart and lungs look good on the x-ray and for the EKG and Blood tests - they came up normal.

So that one more test is left and the local hospitals aren't deemed prepared enough to deal with little ones, so they are scheduling at Yale New Haven for an EEG for him. (CCMC doesn't have someone who can do this until July.) This will require that he's sedated, and I'll likely need to take another day off from work like I did Monday.

I don't regret it at all, but I'm exhausted and just want to know what caused this so we don't have the ghost of the issue haunting us.

I told Gaelon I need a spa day - but I'm thinking I need a weekend where I can spin, and not be worried about kids, or anything else inbetween massages, pedicures and little things to help de-stress me.

Have I mentioned I was interviewing for a new job at Initech too? It's a wonderful job in Quality Assurance, an audit and compliance position. While dealing with my son's issues, and my mom and step dad's ill health I have been trying to decide if I want this job that I've been agressively recruited for. Critical analysis regarding my career is eclipsed by thinking about one beautiful little blonde haired boy.

So what's wrong with my baby? What made my him go cyanotic and scare the poop out of his Mommy and Daddy?

Well like the Doc said - it's just not known and they are leaning towards saying it's a virus right now.

I looked at him last night in his sleep and said "Garret you aren't MS Windows, there are no bugs allowed."

On the work front - I accepted the position. I start my new job on the 2nd of June.

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